Organizations
Parkinson Association of Northern California
An association of about 40 support groups in Northern CA, PANC puts on an annual conference and sponsors ParkinsonWISE training of allied professionals.
American Parkinson Disease Association
A national organization that sponsors webinars and maintains a video library.
Parkinson’s Foundation
This organization has a phone helpline, hosts regular webinars, and supplies aware in care kits for hospital visits.
Parkinson's News Today
Whether you are a patient or a caregiver, others have been in your shoes and can offer valuable insights to complement what you learn from your health care providers.
See the collection of their columnists’ words that may help guide, inspire, support and encourage you.
Michael J. Fox Foundation
The MJFF supports research into treatments for Parkinson’s disease as well as maintaining a library and hosting monthly webinars.
Parkinson & Movement Disorders Alliance
The PMD Alliance is an independent, national nonprofit service that offers resources and education to people in more than 40 countries.
Stanford Parkinson's Community Outreach Program
They provide a referral service for neurologists, physical therapists, speech therapists and other healthcare professionals in Northern CA. They also maintain a list of support groups and upcoming webinars.
Davis Phinney Foundation
A national organization that emphasizes living the best life possible with Parkinson’s. Addresses the needs of young onset PD and the newly diagnosed. They produce a comprehensive manual entitled “Every Victory Counts”.
End of Life Preparation
The Conversation Project
Looking for a way to bring up what matters to you when it comes to what you may or may not want through the end of life? Or, are you looking to ask someone important in your life about their own care wishes but don’t know how to start? The conversation project offers videos, handbooks and valuable resources for discussing end of life wishes.
Compassion & Choices
Plan Your Care Resource Center. Compassion and Choices empowers people to get the care they want during a serious illness or at the end of life. The organization is a comprehensive site that helps people plan well and be advocates for themselves and their loved ones.
Advance Health Care Directive
National Institute on Aging provides extensive support on advanced care planning, including videos to help you understand and communicate your wishes.
Five Wishes
Starter Kit helps you in thinking about and documenting your wishes. This user friendly document is more personal than most advance directives and asks questions that allow you to talk more honestly about your wishes.
Physician’s Orders for Life-Sustaining Treatment
The Coalition for Compassionate Care of California has created and compiled a variety of resources to help educate patients, caregivers, and healthcare professionals on the issues–both medical and deeply personal–surrounding POLST.
Speaking of Death…
Ongoing in-person and Zoom meetings to talk about what matters to us in our living and dying.