Kathy Osbun, Phyllis Sands, Sandy Grant, George Irizary, Arlene Irizary, Ann Walker, Gloria Stubbs, Dana May Casperson, Davis Brown, Suzanne deKozan, Karen Lovvorn, David Getzoff, Barbara France and alternate board member Marc. Alexander.
BOARD MEMBERS ABSENT:
Jim France and Art Rosenblum
CALL TO ORDER:
The regular meeting of the Board of Directors of the Parkinson’s Support Group of Sonoma County (PSGSC) was called to order at 10:05 a.m. by Chair/ President, Kathy Osbun.
APPROVAL OF MINUTES:
The minutes of the March 20, 2013, Board Meeting were approved with the following corrections:
1) David Getzoff should be listed as a present member and Karen Lovvorn as an absent member.
2) Income and expenses listed under Treasurer’s Report are for March, rather than February as stated.
3) It should be added that Phyllis Sands is a member of the Library Committee along with Ann and Arlene.
4) Arlene added that the sound system had been donated to Goodwill as an eco recycle item.
Treasurer Sandy Grant reported that in addition to the income and expenses cited in the Treasurer’s Report, additional income and expenses for April include: income of $33.12 from Tulip Pins, $214 from Donation Jar at the April Meeting. And expenses of $31.52 Library expenses, $49 for sales tax on Tulip Pins, $200 Rent for General Meeting space, $100 speaker’s fee $18.68 to Mike LeMole for tapes. $283 legal fee for advice at last board meeting by Attorney Don Winkle, $10.95 to Ann Walker for library supplies.
Tulip pin sales: 37 pins have been sold in 2013 bringing the overall total to 132 of the original 300.
Methodist church rental agreement: Sandy reported that she had talked to Ann Wilkes and found that the agreement was ongoing, there was no end date for a rental contract.
Audit: David reported that he and Art carried out the audit on the group accounts and that all was in order.
Camcorder Purchase: Bud Suiter and Mike LeMole attended the meeting in order to ask the Board to consider the purchase of a new camcorder. Bud, Mike and two other committeemen make a video recording and then create a DVD of speakers at our meetings, these videos are then available to the membership as a resource. The goal is to make the video process a one man job as Bud wants to retire from this responsibility although he is willing to stay involved until a new system is up and running reliably. Bud and Mike have spoken to a salesman at Best Buy who will sell them a camcorder with necessary accessories and sales tax for approximately $200. After discussion Sandy made the motion that Bud Suiter be allowed to spend up to $225 for the purchase of a new camcorder and accessories. Dana May seconded the motion which was approved by voice vote.
In relation to video recording of speakers at the general meetings Arlene suggested that we get some guidance from Attorney Don Winkle on how we should handle permission to video the speakers. Mike said that he spoke to the speaker before each meeting and told them that he made recordings for the use of the group. He’d not had anyone object. Sandy said she would speak to Don Winkle about having a waiver and how that waiver should be worded.
AWARE IN CARE:
Ryan Roberts Parkinson’s Video: Davis Brown said that Ryan Roberts is moving to Iowa in September so the Parkinson’s video that Ryan created for his Master’s thesis will need to be wrapped in the next months. Deborah Roberts, in the SSU nursing program will take care of copywriting the finished product when the time comes. Davis thought that even though Ryan had produced the video as his Master’s thesis that he had worked with the group and the group might consider an honorarium to be presented before he moved. Dana May, who is working with Ryan to create a finished product said she thought this discussion should be tabled for a later date. There remains a great deal of work to be done on the video before it is ready for the PSGSC website. Davis said he would seek to have all involved get together to decide what needed to be done and how it would be accomplished. Kathy suggested that Dana May continue to work with Ryan and report on progress to Davis and Suzanne.
Practical Ploys for Parkinson’s: Davis has been in contact with Phil and Sue Croel and Sue has indicated that through their long struggle with Parkinson’s that they have learned a lot that might be beneficial to other caregivers and she thought that she would like to write this up and perhaps it could be added to the book Practical Ploys for Parkinson’s. Since there are a number of issues involved in adding to the already finished and printed Practical Ploys for Parkinson’s we should not be involved at this time.
Mary’s Pizza: While we have no report from Mary’s Pizza on the money raised on the fundraising day, early reports are that there was a good turn out. Gloria told the manager that our waitperson was wonderful. The manager said that when wait staff received compliments they were rewarded with a free lunch.
Tulip Pins: Most sales are now coming from new members at general meetings. There are two small display boards available for placement.
Santa Rosa Rural Cemetery Preservation Fundraiser: Dana May’s Tea Table featured a Parkinson’s Awareness theme. Dana May thought that the advertising for the benefit was minimal but it was a good opportunity and venue for increasing awareness of Parkinson’s. We should be mindful of this kind of event so that we can participate in community efforts to spread awareness of the disease and PSGSC.
County Governing Bodies: Suzanne said that neither she nor Davis were able to appear before the County Board of Supervisors or the City Council but she will send emails urging them to note April as Parkinson’s Awareness Month. Dana suggested that we need to have a long range planning strategy for spreading awareness of Parkinson’s and our group.
New brochures are available.
Gloria said that efforts continue to get everyone into the new data base.
Jack Wright will present his prototype tray after adjournment of the meeting. Kathy suggested that he present it to the General Meeting at the same time as we have the presentation from California Telephone Access Program. The decision was made for Jack to demonstrate his tray in the break out sessions after the general session in June.
Sandy was notified the morning of the board meeting that due to another event planned at the Methodist Church on May 4, we would not be able to hold our regularly scheduled meeting there. We continue to have new members who learn of PSGSC through announcements in the Council on Aging newsletter and it would be unfortunate to have them come expecting to attend a meeting and find there was none. Possible alternative meeting places would be Luther Burbank Garden Club or the Matanzas School. Dana May has a call in to Luther Burbank Garden Club. Membership will be notified of venue change by email and phone calls, and there will be someone at the church to redirect people who may not receive word of the change.
Arlene noted that Dr. Lin Zhang a movements disorder specialist from UC Davis Medical Center is scheduled to be our speaker at this meeting and rescheduling would be very difficult.
LETTERS TO HEALTH CARE PROVIDERS:
Kathy read letters written by David and Marc. Both were well received and after general discussion it was decided that as a first step we would combine the two letters and then, after approval, send them not only to Kaiser, but to all other health care facilities in our area. The aim will be to introduce ourselves to health care providers in the area and to urge them to provide specialists in Parkinson’s and movement disorders. Suzanne will undertake to combine the two letters for presentation at the next meeting.
The meeting was adjourned at 11:55 by Kathy Osbun. The next board meeting will be May 15, 2013 at Brush Creek Senior Living off Hwy 12, east of Brush Creek Road.
Barbara France, Recording Secretary.