Art Rosenblum, Sandy Grant, Kathy Osbun, Gloria Stubbs, Ann Walker, Arlene Irizary, George Irizary, Marc Alexander, David Getzoff and Barbara France
Board Members Absent:
Phyllis Sands, Suzanne deKozan, Dana May Casperson, Karen Lovvorn, Davis Brown
Colleen and Ron Trouse
Call to Order:
The regular meeting of the Board of Directors of the Parkinson’s Support Group of Sonoma County (PSGSC) was called to order at 10:10 a.m. by Chair Kathy Osbun.
Approval of Minutes:
The Minutes of the November 20, 2013, meeting were approved with the following corrections:
A grammatical correction in Official Business item, paragraph four: the word less should be replaced by the word fewer.
Under Outside Groups item the first sentence should read: Arlene wondered whether groups such as the Women’s Group or the Men’s Breakfast Group represent a possible Insurance liability.
Under Clinical Trials item: Marc attended a Parkinson’s Disease Foundation meeting last year in Los Angeles, not San Francisco as reported.
In addition to the income and expenses cited in the Treasurer’s Report there was income of $2000 donation from Victoria Hamilton, a friend of Kathy Osbun.
Sandy reported on her conversation with Attorney Don Winkle concerning the question of PSGSC insurance liability for Outside Groups listed in the PSGSC brochure. It is Don Winkle’s opinion that insurance liability does not extend to these groups because they are listed in the PSGSC brochure for information about community support groups.
The name of Kaiser physician who is in charge of the Memory Care Center is Dr. Wyn Canio and her telephone number is 393-3340.
The Redwood Caregivers new brochures will be available in January. When available, Sandy will get them to use in the New Member Packets.
January Annual Meeting:
￼Kathy said that all Board Members must be reelected in January and at present there will be two vacancies. Phyllis Sands resigned at the November Board Meeting and since then Kathy has spoken with Karen Lovvorn who does not feel she can continue on the Board. Kathy thanked her for her service to the Board and invited her to attend whenever possible. Several PSGSC members were approached about becoming Board Members but all had to decline due to other commitments. Kathy has spoken to Steve Pryputniericz who has said he will get back to her with a decision.
It is also necessary to reelect Board Officers at the January meeting. All have indicated that they will continue with present responsibilities except Arlene who said that she would like Marc to take over the official title of Vice Chair for Programs. Arlene feels Marc has been important in scheduling programs for the nest year and would be a great addition to the position. Marc accepted the position.
Kathy also noted that Pat and Carl Ryan will help with set up at the general meetings.
Marc reported that he attended the December14, 2013, presentation by the Michael J. Fox Foundation where major institutions reported on research and trials. The panel discussion presented trial reports and one which Marc found particularly interesting is a study in very early trials dealing with gene therapy. Also of interest is A DBS device being developed by UCSF. Previously Medtronics made the only DBS device. Medtronics is working on a DBS device that not only transmits signals to the brain but receives brain signals as well. This, it is hoped, will a!llow the device to be self programmable.
In Dana May’s absence, Kathy reported that Dana May is moving forward with ideas for Parkinson’s Awareness month in April. One suggestion was to have a fundraiser at a different restaurant each week in April. After discussion, the consensus was that two different fundraisers of this sort might be possible but that four was too many. When Dana May has the information from the restaurants she thinks would be good the Board would then decide which restaurants and which dates would be workable for fundraisers.
George Irizary felt that fundraising would be more successful if people were presented with an identifiable recipient for funds raised. There was general agreement to this idea and Kathy asked Marc to suggest groups we might choose as recipients of our fundraisers. Marc will r!eport on this at the January meeting.
Data Base Update:
Gloria and Kathy continue to work on New Member packets. There are, at present, 30 completed packets and they will wait to complete more until they have the new Redwood Care Givers brochure.
Kathy spoke to Malcolm Rodman about being listed as contact for the Men’s Breakfast Group and he gave consent to list his name in the brochure. Dana May made labels which K!athy and Gloria have added to the PSGSC brochures giving Malcolm’s contact information.
Kathy said that the party was very nice and enjoyed by all attendees. There were 45 members present and 3 new members. The Fijian Choir was very entertaining.
Arlene said that she had attended a Christmas Party where a Seniors Ukulele group preformed. They were very entertaining and might be a good group for the Christmas Party next year.
Sonoma Access Coordinated Transportation Services letter:
In early December, Kathy received an email from Area Agency on Aging (AAA) who asked for support from PSGSC in their application for a grant to build on work accomplished by Federal 5317 New Freedom Cycle 4 funding received by the City of Santa Rosa in 2011. That funding set up initial steps in implementing the Sonoma Access One Call/Click transportation call center and website as an initial step in implementing mobility management in Sonoma County. AAA, in taking ownership of this project is seeking a grant to lead the 40+ partner agencies to solve transportation barriers.
Since this request required rather quick action to meet a mid December filing deadline for the grant, Kathy asked Arlene to investigate the request and report what, if any action, should be undertaken by PSGSC. Arlene felt we should support the grant effort because transportation needs of our members has been a major area of concern for PSGSC. Arlene drafted a letter which was presented to the Board. Sandy made a motion to approve the letter to be sent to AAA, Gloria seconded the motion. The motion was approved by a voice vote.
Sandy reported that Alexis Glidwell at Redwood Caregivers would be the one to help with a workshop for PSGSC facilitators. Alexis would want to know how many people would attend and the level of their experience.
Kathy suggested that those who are facilitating groups at present put forward names of people they think might be able and interested in leading groups and after the first of the year we would make a list of present and possible future candidates for a training workshop. Sandy told Alexis that she would get back to her with specifics in the near future.
Dana May has not been successful in reaching anyone at Sutter concerning our desire to see a Movements Disorder Specialist.
Letter to Hospitals in regard to need for Parkinson’s/Movements Disorder Specialist:
Suzanne had emailed a letter to reflect changes suggested by the board at an earlier meeting. Upon reading, it was determined that not all the suggested changes were incorporated and Kathy said she would reconcile this letter with past suggestions for presentation at the January meeting.
How to Stay in Touch With Members:
Art will bring information on the program his church uses for outreach to the January meeting.
There is no General meeting in January
The January Annual Meeting will be January 15, 2014
The meeting was adjourned at 11:40 a.m. by Kathy Osbun. The next Board meeting will be January 15, 2014 at the Brush Creek Senior Living.
Barbara France, Recording Secretary